Four years ago, a baby with a rare genetic disease was born in Bangladesh, causing him to accelerate aging to give him the appearance of a grandfather. The case of Bayazid Hussein has raised many questions and its history has spread like wildfire. Condemned to live against the current while waiting for his time, the fate of Bayazid is as hopeless as poignant.
When the imaginary joins reality. You've probably been disturbed by watching The Curious Story of Benjamin Button, a film adaptation of a short story by F. Scott Fitzgerald, in which Brad Pitt plays the role of a man who is born old to rejuvenate over the years. A story not so fanciful than that since 1 in 3 billion people would suffer from leukodystrophy, a rare genetic disorder that upsets the nervous system and the spinal cord. Overnight, the infected person develops childish behaviors in an unchanged body.
Curious destiny and sad fate as those of Bayazid Hussein. Thus begins the strange story of the Bengali Benjamin Button, whose life was accelerated prematurely from birth, forcing him to remain a prisoner of an 80-year-old body and leaving him with very little chance of survival.
This 4-year-old boy has a very rare genetic condition known as progéria (Hutchinson-Gilford syndrome), which affects only 80 people worldwide and causes them to age 8 times faster than normal. His body undergoes the agonies of time, like that of an old man. Bayazid suffers from joint pain and can not live normally like children of his age who get scared as soon as they see his puffy and chubby face and his eyes dug.
If he has no mental retardation, Bayazid is suffering from Cutis Laxa syndrome, understand "relaxed skin" in Latin, this one sags down to fall into tatters. In addition, he suffers from urinary problems and risks stroke in the years to come. Doctors do not predict him more than 9 years to live.
Tripti Khatun had given birth to Bayazid when she was only 14 years old, following a consanguineous union with her cousin Lovelu. A relationship that is very badly perceived in Bangladesh, because it is considered incestuous.
The mother confides that she was horrified when she first held her child, which was a mound of skin and bones and looked more like an extraterrestrial creature. Her heart was broken. Especially since the doctors seemed to be as perplexed and as helpless as they had never seen such cases before, they had clearly told the couple that the case of Bayazid was desperate.
Tripti saw her motherhood from day to day and was delighted to have conversations with her son, whom she described as a child like all the rest, stubborn and impatient but very intelligent, conscious and intuitive for her age.
Insufficient funds have been raised in medical research. No treatment exists to this day and the condition of the poor child does not seem ready to improve, worsening day after day.